Defying the Odds:  Fifteen Years and Counting After a Life-Changing Diagnosis

November 30, 2024

By Ann Waithaka, Senior Communications Officer and Isabel Radoli, Communications Officer

One of the most rewarding aspects of being a development communications expert, especially in research and evidence-based initiatives, is the opportunity and privilege to bridge the gap between knowledge and impact. At APHRC, I contribute to the mission as part of the Synergy Unit of the Policy Engagement and Communications (PEC) Program. My role involves translating research evidence into forms that motivate action from diverse stakeholders. I transitioned into this role in January 2024, following my tenure as the Program Communications Officer for CARTA since May 2022. While my professional journey spans diverse environments, it is in research and development where I have found a home to bring my passion and aspirations to life. Outside work, I am outgoing, curious, and eager to explore new places. Cooking is one of my love languages, and I find joy in bringing people together over good food and meaningful conversations.

Despite all these wins, my life has not always been smooth sailing. At the tender age of 16, life took an unexpected turn that would change everything. I received a diagnosis that caught me entirely off guard and almost turned my entire life upside down!

The Diagnosis that Changed it All

As I was gearing up for my second year of high school, filled with excitement and hope for the year ahead, things turned unexpectedly. It was supposed to be an ordinary day—a routine family visit to the hospital for my baby brother’s checkup. A simple blood sugar test revealed dangerously high levels, and before I knew it, I was admitted to the hospital and diagnosed with type 1 diabetes. That week-long stay marked the start of a lifelong journey with juvenile diabetes—a journey that began with the shock of a new reality and a determination to adapt and move forward.

I missed most of my second term in form two as my family, and I worked to stabilize my blood sugar and prepare me for life with a chronic condition. These were moments of uncertainty as we grappled with what the future held for me. At one point, my parents considered transferring me to a day school, but my headmistress firmly believed I should stay in boarding school. She feared the move might compromise my academic potential, and her faith in me set a powerful tone for the rest of my journey.

The school rallied around me in ways I will never forget. They facilitated a special diet tailored to my needs and even assigned a cook to prepare my meals at no extra cost. Thanks to this incredible support system, I not only focused on merely coping, I thrived. I excelled academically, participated in sports and competitions, and enjoyed a high school experience that felt remarkably similar to my peers. 

Testing the Limits and Pushing Boundaries 

I performed well in my final exams and earned a place at Moi University. Starting university was a bittersweet achievement. The distance from home posed challenges for my family and me, but it also began a new chapter that tested my independence and health management. I remained vigilant, maintaining a careful diet, exercise, and self-care balance. My determination paid off. I graduated in 2017, entered the workforce shortly after, and by 2019, embarked on a master’s degree, which I completed in 2021. During this time, I also established my career in development communication and attended prestigious fellowships such as the Young African Leaders Initiative (YALI).

Living with diabetes has been a continuous balancing act, requiring discipline, proper nutrition, and regular checkups. Yet, I have made it a point to live fully. Whether traveling to new places or creating cherished moments with loved ones, I have never let diabetes define or limit my life. Each adventure reminds me that while diabetes influences my decisions, it doesn’t dictate them.

Ushering a New Chapter in Motherhood

Earlier this year, at the age of 30, I welcomed my first child—a healthy, handsome baby boy. Pregnancy as a person with diabetes was a daunting experience, filled with moments of anxiety and countless medical appointments. But with careful management, a dedicated medical team, and unwavering family support, I successfully navigated the journey. I am grateful to have embraced motherhood while remaining fully present in other aspects of my life, including my work.

My Reflections and Thoughts So Far

Living with diabetes is a reality I face daily, but November holds a special place in my heart as the world observes World Diabetes Day on November 14. Each milestone I have reached is a testament to perseverance, hope, a supportive network of family and friends, and advancements in diabetes care.

As I reflect on my journey and the stories of others living with diabetes in Kenya and beyond, I am reminded of the growing prevalence of diabetes and other non-communicable diseases affecting people of all ages. Whether or not one lives with a medical condition, it is essential to prioritize your health through balanced nutrition, regular exercise, adequate rest, and mental well-being.